The Purple Dragon Slayer

First Posted on by Ken

   ^When I  first started my research I wanted  to  slay this bastard^

I had many people are Facebook ask me to put an about me link “top tag” post at the         top of this personal blog to inform the visitants about what got me to where I am today.      I always felt this blog wasn’t about me,  it’s free access to those in need 0f  information    and inspiration to become labeled “cancer free.”
 MY Story started March 2006 when I lost my father to Leiomyosarcoma, and my         father always felt that what was needed in this world. Was an avenue to walk with      answers for cancer.  So cancer patient could better be informed through awareness            of the options available.
 My father always thought what doctors only knew was the information gather at the hospital they worked and never compared notes with the institutions around them and       that many didn’t even now that. And the only thing they knew in most cases was the information that the patient knew themselves.

Preview YouTube video Leiomyosarcoma Survivor: Warren Bailey

Hope4Cancer Institute/ Testimonial/ Stage lV Leiomyosarcoma

    These risk  factors provide leads  for  further investigations into the genetic and environmental determinants of  various  forms of  SoftTissueSarcomas. Cancer is a genetic disease in which many  factors including diet, smoking, chemicals, sunlight, hereditary factors, and viruses are thought to cause alterations or mutations in our genes. An alteration can result in a change of  the DNA material within a gene or in excessive copies of a gene. When enough mutations accumulate, the normal process  inside the cell go awry, and tumors begin to grow.

The first case  of Leiomyosarcoma  was found in 1994according to a Case Study               by the University of Ontario.  This cancer only accounts for 5%-10% of all soft tissue sarcomas.  Famous people like Padma L. Atluri, a writer for 90210 and Men in Trees,    and Katie Price (Jordan), an English media personality, both suffered from LMS…

Learning that complementary treatments may not work for aggressive sarcomas. 

With various sarcomas and a variety of mesenchymal tumors, including: 

  • Alveolar soft part sarcoma
  • Angiosarcoma
  • Chondrosarcoma
  • Desmoid tumor
  • Desmoplastic small cell tumor
  • Epithelioid sarcoma
  • Ewings sarcoma
  • Extraskeletal mesenchymal chondrosarcoma
  • Extraskeletal osteosarcoma
  • Fibrous histiocytoma of bone
  • Fibrosarcoma
  • Gastrointestinal stromal tumor (GIST)
  • Kaposi’s sarcoma
  • Leiomyosarcoma
  • Liposarcoma
  • Malignant fibrous histiocytoma (MFH)
  • Malignant mesenchymoma
  • Malignant primative neuroectodermal tumor (PNET)
  • Myofibroblastic sarcoma
  • Myxofibrosarcoma
  • Neurofibrosarcoma
  • Osteoganic sarcoma
  • Osteosarcoma
  • PEComa
  • Rhabdomyosarcoma
  • Malignant schwannoma
  • Spindle cell sarcoma
  • Synovial sarcoma

they are so deadly to treat with so little known about some of them!!! 

It is quite clear that there are certain situations which cause certain damage which can result in Sarcoma’s and the main one I am writing about LeioMyoSarcoma.

 Why don’t all the people who CAN get a cancer get it?

It’s chance. It depends upon what the radiation photon, the virus, the antibody, actually attacks. Since most of the causal agents cause DNA damage, the sum of the exposures IS additive.

Much of the damage  comes  from free radicals.  Antioxidants  help  prevent  free radicals.    So one way that people predisposed to cancer DON’T get the cancer, is lots of antioxidants in their foods. This has been illustrated with the epidemiological investigation of green tea drinkers and cancer incidence rates.

For exposure to be significant, it is usually noticeable. The one person I know who was exposed to that wood preservative, painted her deck and practically bathed in it. People who have had radiation therapy, or significant exposure to radiation know about it, usually. Cyclosphosphamide does not grow freely under trees.

Autoimmune disease,  especially thyroid,  seems  to  predispose  to  malignancy. Autoimmune disease relapses can be stress related. If there is less stress, there will be fewer autoimmune active spells, and fewer antibodies, and less chance of getting p53   DNA damage. Autoimmune disease itself probably develops from a combination of genetric susceptibility and possibly a viral trigger.

About smoking– there was one study done that showed DNA repair took longer in cells    of people who smoke.

In the words of a friend, it’s mostly a crapshoot. BUT it is not completely a crapshoot. There are predisposing factors, and there are things you can do to counteract those factors…

Among the environmental exposures associated with STS are:
Some cases of severe immunodeficiency [AIDS, transplant patients] show Epstein-Barr virus is sometimes implicated in LMS.
Sarcomas, including LMS, are associated with autoimmune thyroid disease, and associated with other autoimmune illnesses.
In some cases the genetic predisposition may have interacted with environmental determinants to produce particular tumors.

arsenical pesticides and medications,
chlorophenols,
phenoxy herbicides,
dioxin,
vinyl chloride,
immunosuppressive drugs,
alkylating agents,
androgen-anabolic steroids,
human immunodeficiency virus,
human herpes virus type 8 [Kaposi’s sarcoma]
chronically edematous arms after radical mastectomy for breast cancer (Stewart-Treves syndrome).

external radiation therapy (prevalence of radiation-induced sarcoma: 0.17-0.21%),
Thorotrast [a contrast Xray dye no longer used]…
 In my last ten years of self discovery always turning over another stone….     I  have  always  found new books from ….  Incurable to Incredible where Tami Boehmer uncovers many inspiring cancer survivor stories. The one sticking out mostly to mean on my search to find the LMS Cure was Yvonne Cooper.  Finding the answer with the Bill Peeples Protocol …. (GOOGLE IT FOR YORSELF)!!!!
Also:    Thriver Soup Thursday—Patricia’s Journey with the Purple Dragon
“Once the soul awakens, the search begins and you can never go back.”
–John O’DonohueThe soul of Patricia Moreira-Cali has been stirred into full life by a purple dragon known as leiomyosarcoma. It is a rare and aggressive form of cancer, and for women it usually starts in the uterus…. PATRICIA has also embarked on a journey of healing and self-discovery since April 23, 2013. It hasn’t always been an easy road, as the chemotherapy has let to some brutal side-effects on her body, but she tries her best not to give in to the Purple Dragon…
On April 23, 2013, Patricia’s uterine “fibroids” were found to be cancerous, and she     began a perilous journey that continues today. She so bravely talks about her first year after the diagnosis in her book, “My Journey with the Purple Dragon.” She goes into vulnerable detail about her emotional experiences and her search for a cure.
“Friends and family are not with you at all times of the day and night,” she wrote. “You are alone when the tears seem endless, when the sorrow is so painful that it’s hard to breathe, when the grief cuts through your core, when you long for the freedom to feel healthy, and when you are introduced to death, and somehow you befriend it.”She experiments with a variety of complementary treatments while doing conventional chemotherapy. “I have no doubt that the treatment of cancer, and many other chronic diseases, requires a holistic approach,” she wrote. Among her choices were to visit John of God in Brazil, and she describes her experiences there.
Gradually, the reader witnesses Patricia’s inner transformation. “A new me is emerging, growing and flourishing, somehow,” she writes.When she reaches the end of her first year of treatment, she finds an enviable place of serenity. “I have detached from much illusion, and I feel mostly at peace within.”
The book is self-published and could benefit from professional editing, yet overall it is a moving story of courage and a roadmap for others on the journey with cancer.
Profits from Patricia’s book sales go to leiomyosarcoma research and to support a poor child with cancer through her non-profit Helping Children Heal (HCH). Her book can     be ordered at http://www.purpledragonjourney.com/order-now/

…AS the old year became 2016.  I was ask to explain what happen to Rosa Parkin. HOW could one member of our facebook goup be doing so well… only to have it all turn out so horribly wrong for her the 1st Week of September.  MY first thought  would be blame the chemotherapy see mixed with the natural or cannabis oil. With the second thought being maybe the travel strain  and pressure she faced toward the end  or  the Oregon Trip from the U.K.  She also took to find the quality and affordable cannabi…s oil she seeked.  With mY third thought being:  Leiomyosarcoma… being an aggressive type of cancer ~ maybe she should have tried  the lesser toxic known cancer treatment  that we are now starting   to realize.  That might be a better bet  than this guessing game  we often find us in trying    to figureout the answers in the groups.

What I do know about Rosa is this: when she was DX with LMS she was given only two years to survive  and in the end it was two years five days.  However,  when she came into our group October 2014. She had a 8cm tumor in her uterus preventing her from walking. With renewed hope and awareness…. in only a few days  she was out of her bed.  Learning all about newer options and meeting new friends in the cancer groups on Facebook with a positive outlook on her outcome.

Rosa tried many things and in the end was pain free and had peace within herself. Being guided to heaven with the magical oil by her side.  Looking back  I so realize things happen for a reason and Rosa was very fortunate meeting the people from the groups she found on Facebook and couldn’t Thank Enough…  R.i.P.  MY Dear Friend    😇💕💜👍😇 💕

Rosa Parkin's Profile Photo

Since that September date when I received the devastating news. I have continued on my search for the answer that would finally slay the purple dragon. Learning through a relapse and recovery of a Former Facebook Friend from Thailand that Immunotherapy helped her twice to become cancer free of the dreadful dragon.  Learning when it comes to aggressive cancer one best be keeping all options open.

Within the conventional realm: Three leading sarcoma specialist treating sarcomas are Orthopaedic surgeon Dr. John Healey whom talks about the specialized care people with sarcoma — cancer of the bone or muscle — receive  at  Memorial Sloan-Kettering in NYC.   Dr.  Healey is generally regarded as one of the best in the world treating sarcoma’s!!!!

Dr. Suzanne George M.D. clinical responsibilities involve working extensively with the multidisciplinary team  within  the Center for Sarcoma and Bone Oncology  at  the Dana-Farber Cancer Institute.  I treat  and provide consultation to many patients with sarcoma both from the New England area, other parts of the United States and from abroad.  I am actively involved in the clinical research aspects of our program. Specifically I am working with our research team to developing and executing new clinical trials focusing on therapy for metastatic soft tissue sarcoma as well as being involved in the execution of ongoing clinical trials in our group.

Also Dr. Pasquale Benedetto is a board-certified, fellowship-trained professor at the University of Miami’s Sylvester Comprehensive cancer Center. He received his medical doctorate at the Weill Medical College of Cornell university in New York City, New York. David Octavio Gandell,  a 2 time Cancer Survivor believed that God would heal him and that Dr. Pasquale W. Benedetto, M.D, was God’s instrument.  Dr. B was the only Doctor that asked to take the case,  no one believed  their was anything  that could save his life and in this special interview … Dr.  Benedetto speaks  about David’s Faith  and Miracle       as he exceeded all expectations.

UPDATE: A few nights ago I chatted with Claudia (right) about her sister Maria (Left)   and a TITLE: A Phase II Trial of Concurrent Axitinib and Pembrolizumab in Subjects    with  Advanced Alveolar Soft Part Sarcoma (ASPS)  and  Other Soft Tissue Sarcomas  (STS) clinic trial she is having at University of Miami   an Associate 0f Dr. Benedetto     for   Leimyosarcoma and everything is still looking quite favorable.
http://uhealthsystem.com/doctors/profile/135059
With just a bit of edema in her hands/feet . Maria is experiencing no major side effects with a first scan planned for October 25th. LMS is the major reason I do what I do and would like to Slay this Dragon someday. Please lets include Maria in our prayers often.

Preview  Cancer Survivor Exceeds Doctors expectations through FAITH

Cancer Survivor Exceeds Doctors expectations through FAITH
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